tag:blogger.com,1999:blog-8318326116804763445.post1477352723044777739..comments2019-03-24T13:53:51.863+00:00Comments on The Retired Bridgeburner - Adventures in Fibromyalgia and IC: Who Am I?... 24601The Retired Bridgeburnerhttp://www.blogger.com/profile/16022494417614938256noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8318326116804763445.post-50278624501086195392013-05-25T21:25:28.909+01:002013-05-25T21:25:28.909+01:00Thank you Leah! :)
Whilst it doesn't directl...Thank you Leah! :) <br /><br />Whilst it doesn't directly affect me as I'm able to hold down full time work at the moment (with a very understanding company who make concessions - I don't think it would be possible otherwise) it still makes me angry to read about the way it is being handled. No thought at all has gone into it and it's downright cruel. I'm sorry to hear you're going to have such a tough choice to make :( <br /><br />I think we all do the "it could be so much worse" thing a bit - our experiences are worthy of discussion and they'll always be someone worse, but that never makes anyone's experiences less valid :) <br /><br />Thank you for the kind words - I seem to have found I can waffle whilst making it look planned haha :-)<br /><br />xx<br /><br />The Retired Bridgeburnerhttps://www.blogger.com/profile/16022494417614938256noreply@blogger.comtag:blogger.com,1999:blog-8318326116804763445.post-64224348211032718012013-05-25T21:17:48.086+01:002013-05-25T21:17:48.086+01:00I'm very inconsistent still - some times I can...I'm very inconsistent still - some times I can psych myself up positively and shelve the guilty feelings, other times I'm virtually poleaxed with it. I suppose nothing given easily was usually worth having - I hope like you it's not forever and that one day we'll all know what to do to get better. Wishing you many spoons :) xThe Retired Bridgeburnerhttps://www.blogger.com/profile/16022494417614938256noreply@blogger.comtag:blogger.com,1999:blog-8318326116804763445.post-91343077086425745122013-05-24T20:56:38.877+01:002013-05-24T20:56:38.877+01:00I think I'm still angry. Or in denial. I was...I think I'm still angry. Or in denial. I was never shocked, as I have friends with FM and was fairly confident before a GP and 3 specialists confirmed it, but I'm not convinced that this is it forever, and I therefore carry on as if I've just got a long-lasting bout of flu. I do feel awfully guilty about letting people down and not doing things because I can't on any given day. Not managed to cure myself of that...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8318326116804763445.post-92099014756879913432013-05-19T23:51:38.455+01:002013-05-19T23:51:38.455+01:00A really great post.
When I first became ill I r...A really great post. <br /><br />When I first became ill I raged against it, and did so for about 3 years until I got to the point where I was sofa-bound when I wasn't bed bound. It took that long for me to test/prove that it was in fact happening, I wasn't imagining it or putting it on, and that YES my body was kaput. Part of this 'testing out' process for me was giving up my full time job, doing part time voluntary work, then after a long rest doing part time paid work, until I was getting injured so regularly that I had to re-assess, and admit even working 15 hours a week wasn't in my capability. <br /><br />This is a massive source of guilt, as my poor husband works so incredibly hard. For a long time I 'made up' for this by being as Stepford wife-esque as possible, but these days cleaning out my emails is taxing, let alone cleaning the flat. Hubby comes home from work, wrestles the hoover from me when I've been stupid enough to waft it around, puts his tea on and makes me a cuppa while I sit like a mad woman on the sofa repeating words to myself over and over so I don't forget what is it I need to do/say next. <br /><br />When the bath buns at the DWP stop my ESA (which they will do in about 9 months since they've put me in the work focussed group) I have a choice - go back to work and totally ruin what gossamer strand of physical health I have remaining (and utterly annihilate what's left of my mental health) or downscale my already very small life to a teensy weensy life devoid of all pleasure, just to get by. <br /><br />I know it could be so much worse, and I am extremely thankful for my husband, my understanding friends and my supportive family. The guilt is something I'm working on, but more than anything at the moment I'm consumed by anger at the way the Government are treating the sick and disabled.<br /><br />Sorry for the uber long comment - I really enjoy your writing. It's very thought provoking!Just me, Leahhttps://www.blogger.com/profile/13863490605328463689noreply@blogger.com